Personalised healthcare is constantly evolving with a growing community benefitting from and advocating for it

Next it was clear that we needed to find a way to further support the health advocate community. We agreed that beyond collaborating with advocates on the materials required to educate their communities, we want to support their work with health systems and policy-makers to ensure that patient and carer voices are represented throughout decision-making and in strategies for personalised solutions.

An existing, publicly available framework helped us achieve this goal: the Personalised Healthcare Policy Building Blocks, developed by the Future Proofing Healthcare initiative. In an analysis of 80+ healthcare plans, interviews, and a process of industry validation by a panel of experts, 50 unique elements needed to achieve personalised healthcare across different countries and health systems were identified. These elements form 17 building blocks, which span four core categories:

For each of the elements associated with these three building blocks, clear action areas were mapped. When the group of health advocates behind the Hub and Toolkit were presented with the Personalised Healthcare Policy Building Blocks, they agreed that this would be the ideal framework to form the backbone of a Playbook for Health Advocates.

Bringing the open-source educational materials together with a wealth of existing resources on ecosystems development and policy, as well as data and digitalisation of healthcare, we brought all of the excellent work already being done by advocacy organisations under a single framework for creating change, and created the Personalised Healthcare Hub to house it.

Our patient organisation partners