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IEEPO 2021 Position Paper

References

Failing states of health - How broader collaboration can bring us closer to the future of health | Healthcare IT News. (n.d.). Retrieved October 23, 2021, from https://www.healthcareitnews.com/blog/emea/failing-states-health-how-broader-collaboration-can-bring-us-closer-future-health

Telehealth is here to stay. (2021). Nature Medicine, 27(7), 1121. https://doi.org/10.1038/s41591-021-01447-x

Beaverson, M. (2020, December). How COVID-19 Has Accelerated Digital Transformation in Healthcare. HealthTech. Retrieved from https://healthtechmagazine.net/article/2020/12/how-covid-19-has-accelerated-digital-transformation-healthcare

Bereczky, T. (2019). Patient Advocacy – With a Feeling: Patient citizenship – The description of an affective model of patient advocacy. Eötvös Loránd University Budapest. https://doi.org/10.15476/ELTE.2019.292

Bermejo-Martins, E., Luis, E. O., Sarrionandia, A., Martínez, M., Garcés, M. S., Oliveros, E. Y., … Fernández-Berrocal, P. (2021). Different Responses to Stress, Health Practices, and Self-Care during COVID-19 Lockdown: A Stratified Analysis. International Journal of Environmental Research and Public Health, 18(5), 2253. https://doi.org/10.3390/ijerph18052253

Browning, M. (2006). Dancing Their Disease | Arts & Culture | nashvillescene.com. Retrieved October 31, 2021, from https://www.nashvillescene.com/arts_culture/dancing-their-disease/article_ed2d0e31-feaa-5e88-909a-92ff5c9f7632.html

Bunn, C., Kalinga, C., Mtema, O., Abdulla, S., Dillip, A., Lwanda, J., … Gray, C. M. (2020). Arts-based approaches to promoting health in sub-Saharan Africa: a scoping review. BMJ Global Health, 5(5), e001987. https://doi.org/10.1136/bmjgh-2019-001987

Burrage, J. (2015). Shooting the messenger: the erosion of trust in science and what to do about it. Australasian Physical & Engineering Sciences in Medicine, 38(1), 1–3. https://doi.org/10.1007/s13246-015-0335-8

Busch, I. M., Moretti, F., Travaini, G., Wu, A. W., & Rimondini, M. (2019). Humanization of Care: Key Elements Identified by Patients, Caregivers, and Healthcare Providers. A Systematic Review. The Patient - Patient-Centered Outcomes Research, 12(5), 461–474. https://doi.org/10.1007/s40271-019-00370-1

Campbell, M. K., Hudson, M. A., Resnicow, K., Blakeney, N., Paxton, A., & Baskin, M. (2007). Church-Based Health Promotion Interventions: Evidence and Lessons Learned. Annual Review of Public Health, 28(1), 213–234. https://doi.org/10.1146/annurev.publhealth.28.021406.144016

Carleton, R. N. (2016). Fear of the unknown: One fear to rule them all? Journal of Anxiety Disorders, 41, 5–21. https://doi.org/10.1016/j.janxdis.2016.03.011

Dantas, C., Mackiewicz, K., & Tageo, V. (2020). Citizen-controlled health data sharing governance - Consultation paper. Brussels. Retrieved from https://digitalhealtheurope.eu/wp-content/uploads/2020/11/Consultation-Paper-Citizen-controlled-health-data-sharing-governance.pdf

Eliasen, B. (2021). Repairing A Broken System. About Digital Health. Retrieved October 23, 2021, from https://aboutdigitalhealth.com/2020/10/22/repairing-a-broken-system/

Epstein, S. (1995). The Construction of Lay Expertise: AIDS Activism and the Forging of Credibility in the Reform of Clinical Trials. Science, Technology & Human Values, 20(4), 408–437. https://doi.org/10.1177/016224399502000402

Galjour, J., Schwarz, T., Rusike, I., Lomazzi, M., Hoemeke, L., Prytherch, H., … Mpinga, E. K. (2021). From “learning from the field” to jointly driving change. Journal of Public Health Policy, 42(2), 331–345. https://doi.org/10.1057/s41271-021-00280-3

Groth, O. J., Nitzberg, M., & Zehr, D. (2019). Comparison of National Strategies to Promote Artificial Intelligence - Part 1. Berlin: Konrad Adenauer Stiftung.

Hafen, E. (2019). Personal Data Cooperatives – A New Data Governance Framework for Data Donations and Precision Health (pp. 141–149). https://doi.org/10.1007/978-3-030-04363-6_9

Haslam, D. (2015). “More than kindness.” Journal of Compassionate Health Care, 2(1), 6. https://doi.org/10.1186/s40639-015-0015-2

Heath, S. (2019). 3 Provider Communication Strategies for Creating Patient Trust. Retrieved October 24, 2021, from https://patientengagementhit.com/news/3-provider-communication-strategies-for-creating-patient-trust

Hewlett, S. A., Marshall, M., & Sherbin, L. (2013). How Diversity Can Drive Innovation. Retrieved October 24, 2021, from https://hbr.org/2013/12/how-diversity-can-drive-innovation

Hotez, P. J. (2021, March). The Antiscience Movement Is Escalating, Going Global and Killing Thousands. Scientific American.

Hughes, M. T. (2013). Meeting Patients Where They Are. AMA Journal of Ethics, 15(4), 293–298. https://doi.org/10.1001/virtualmentor.2013.15.4.ecas2-1304

Hunter, P. (2020). The “industrial” revolution in biomedical research. EMBO Reports, 21(2). https://doi.org/10.15252/embr.202050003

Huttner-Koros, A. (2015, August). The Hidden Bias of Science’s Universal Language. The Atlantic.

Jacob, C. (2019). The Promise of Health Data : Is it the new Oil? Basel: International Women in Science and Women in Digital Health joint event. https://doi.org/10.13140/RG.2.2.16351.82082

Jain, Y., Joshi, N., Bhardwaj, P., & Suthar, P. (2019). Health-promoting school in India: Approaches and challenges. Journal of Family Medicine and Primary Care, 8(10), 3114. https://doi.org/10.4103/jfmpc.jfmpc_673_19

Janska, E. (2008). Health Knowledge, Traditional Health knowledge, traditional BT - Encyclopedia of Public Health. In W. Kirch (Ed.) (pp. 611–614). Dordrecht: Springer Netherlands. https://doi.org/10.1007/978-1-4020-5614-7_1431

Kalkman, S., Mostert, M., Gerlinger, C., van Delden, J. J. M., & van Thiel, G. J. M. W. (2019). Responsible data sharing in international health research: a systematic review of principles and norms. BMC Medical Ethics, 20(1), 21. https://doi.org/10.1186/s12910-019-0359-9

Kickbusch, I., Piselli, D., Agrawal, A., Balicer, R., Banner, O., Adelhardt, M., … Wong, B. L. H. (2021). The Lancet and Financial Times Commission on governing health futures 2030: growing up in a digital world. The Lancet. https://doi.org/10.1016/S0140-6736(21)01824-9

Leese, J., Backman, C. L., Ma, J. K., Koehn, C., Hoens, A. M., English, K., … Li, L. C. (2021). Experiences of self‐care during the COVID‐19 pandemic among individuals with rheumatoid arthritis: A qualitative study. Health Expectations, hex.13341. https://doi.org/10.1111/hex.13341

Mainenti, D. C. (2019). Big data and traditional Chinese medicine (TCM): What’s state of the art? In 2019 IEEE International Conference on Big Data (Big Data) (pp. 1417–1422). IEEE. https://doi.org/10.1109/BigData47090.2019.9006479

McCorkell, L., S. Assaf, G., E. Davis, H., Wei, H., & Akrami, A. (2021). Patient-Led Research Collaborative: embedding patients in the Long COVID narrative. PAIN Reports, 6(1), e913. https://doi.org/10.1097/PR9.0000000000000913

Mitchell, M. (2021, May). The biological revolution will accelerate. Scenario.

Morgantini, L. A., Naha, U., Wang, H., Francavilla, S., Acar, Ö., Flores, J. M., … Weine, S. M. (2020). Factors contributing to healthcare professional burnout during the COVID-19 pandemic: A rapid turnaround global survey. PLOS ONE, 15(9), e0238217. https://doi.org/10.1371/journal.pone.0238217

Mukerji, M., & Sagner, M. (2019). Genomics and Big Data Analytics in Ayurvedic Medicine. Progress in Preventive Medicine, 4(1), e0021. https://doi.org/10.1097/pp9.0000000000000021

Negreiro, M. (2021). The rise of digital health technologies during the pandemic. Brussels: European Parliamentary research Service. Retrieved from https://www.europarl.europa.eu/RegData/etudes/BRIE/2021/690548/EPRS_BRI(2021)690548_EN.pdf

Obama, B. (2015). Remarks by the President on Precision Medicine. Washington, D.C.: White House.

Paakkari, L., & Okan, O. (2020). COVID-19: health literacy is an underestimated problem. The Lancet Public Health, 5(5), e249–e250. https://doi.org/10.1016/S2468-2667(20)30086-4

Qi, S., Hua, F., Xu, S., Zhou, Z., & Liu, F. (2021). Trends of global health literacy research (1995–2020): Analysis of mapping knowledge domains based on citation data mining. PLOS ONE, 16(8), e0254988. https://doi.org/10.1371/journal.pone.0254988

Saltelli, A. (2018). Why science’s crisis should not become a political battling ground. Futures, 104, 85–90. https://doi.org/10.1016/j.futures.2018.07.006

Schaeffer, D., Berens, E.-M., Gille, S., Griese, L., Klinger, J., de Sombre, S., … Hurrelmann, K. (2021). Gesundheitskompetenz der Bevölkerung in Deutschland vor und während der Corona Pandemie: Ergebnisse des HLS-GER 2. Bielefeld: Universität Bielefeld. https://doi.org/10.4119/unibi/2950305

Sinclair, S., Norris, J. M., McConnell, S. J., Chochinov, H. M., Hack, T. F., Hagen, N. A., … Bouchal, S. R. (2016). Compassion: a scoping review of the healthcare literature. BMC Palliative Care, 15(1), 6. https://doi.org/10.1186/s12904-016-0080-0

Sperling, L. (2020, November). Silos in healthcare are bad for us. Here’s the cure. WEF Agenda.

The Copenhagen Institute for Futures Studies. (2021). The Next Era in Global Health: How to Enable Quality of Life and Wellbeing? (K. Æ. Mogensen, Ed.). Copenhagen: Copenhagen Institute for Futures Studies. Retrieved from https://books.google.de/books?id=obkmzgEACAAJ

Thompson, R. G. A., Nutor, J. J., & Johnson, J. K. (2021). Communicating Awareness About COVID-19 Through Songs: An Example From Ghana. Frontiers in Public Health, 0, 853. https://doi.org/10.3389/FPUBH.2020.607830

Topol, E. (2015). The Patient Will See You Now. New York: Basic Books.

UN. (2015). Universal Declaration of Human Rights (Illustrate). Geneva: United Nations. Retrieved from https://www.un.org/en/udhrbook/pdf/udhr_booklet_en_web.pdf

Walsh, B. (2021). White House science advisers call for an “AI Bill of Rights.”

WHO. (2021). WHO Guideline on self-care interventions for health and well-being. Geneva: World Health Organization. Retrieved from https://www.who.int/publications/i/item/9789240030909

WHO. (2021). Global strategy on digital health 2020-2025 (Licence: C). Geneva.

WHO, UN, UNICEF, UNDP, UNESCO, UNAIDS, … IFRC. (2020). Managing the COVID-19 infodemic: Promoting healthy behaviours and mitigating the harm from misinformation and disinformation. Geneva: World Health Organization.

Wilbur, K., Snyder, C., Essary, A. C., Reddy, S., Will, K. K., & Mary Saxon. (2020). Developing Workforce Diversity in the Health Professions: A Social Justice Perspective. Health Professions Education, 6(2), 222–229. https://doi.org/10.1016/j.hpe.2020.01.002

Woolston, C., & Osório, J. (2019). When English is not your mother tongue. Nature, 570(7760), 265–267. https://doi.org/10.1038/d41586-019-01797-0