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The IEEPO Changemaker video series

The Changemaker video series puts a spotlight on patient leaders that are transforming healthcare and advocating for meaningful health policy change for their communities. 

The five-part series will feature patient advocate leaders from around the world and in different disease areas or from umbrella organisations, who will share their experiences and learnings and discuss how their work has been able to transform healthcare for patient communities, in both global and local settings. The IEEPO CHANGE domain hopes to emphasise a ‘think global, act local’ approach; the video series promotes that global health policy can and should be driven by what is happening within communities on the ground. 

An overview of the Changemaker series by Nicola Bedlington

Nicola Bedlington, IEEPO CHANGE domain leader and former Secretary-General of the European Patient Forum, gives a brief introduction to the IEEPO CHANGE domain, the Changemakers and discusses what you can expect from the video series.


Watch the Changermaker Series Teaser Below

Changemaker spotlight: Durhane Wong-Rieger In conversation with Samuel Wiafe

Samuel Wiafe

Watch Durhane Wong-Rieger, President & CEO of the Canadian Organization for Rare Disorders in conversation with Samuel Wiafe, founder and director of the Rare Disease Ghana Initiative.

During the ‘In Conversation’ video series, hear from Samuel, a healthcare professional and patient advocate, working to improve the standards of care for rare disease patients in Ghana. Find out more about how his work, and a multi-stakeholder approach to health policy, has transformed the way patients in Ghana access better diagnosis and treatments for their rare diseases and listen to his learnings for how patient leaders can make change for their own communities.

As part of the series, you'll also have the chance to read Samuel's 'how to guide' (found in the LEARN Library) which aims to supplement the learning from the videos, inspire and give practical advice to patient communities advocating for change around the world (coming soon). 

Video 1/3: Durhane and Samuel discuss how Samuel was inspired to advocate on behalf of the rare disease community!
Video 2/3: Durhane and Samuel discuss the importance of working with multidisciplinary stakeholders to transform access to diagnosis and treatment!
Video 3/3: Durhane and Samuel discuss the challenges and successes Samuel has faced and what lies ahead for the Rare Disease Ghana Initiative!

IEEPO 2021: Domain Overview

IEEPO 2021 will be organised around four key domains of engagement: THINK, LEARN, CHANGE and MAKE. Each domain has a unique focus and provides an opportunity for continued dialogue, co-creation and transformative collaboration.