Across two days, 242 participants attended 19 inspiring breakout sessions during the IEEPO Action Workshops. Those who participated in the workshops had the opportunity to continue their international experience exchange and learn from each other in smaller groups to explore one of three thought-provoking topics, including how to improve:
- Equal access to healthcare for those living in rural or remote areas
- Digital-health literacy among the younger or older generation
- Equal access to healthcare for patients with low socio-economic backgrounds.
The workshops aimed to inspire the IEEPO community to advocate for policy change, utilising the IEEPO Position Paper as a tool to support and strengthen their initiatives and action change locally!
“I’m quite impressed with how tactical and actionable the IEEPO Action Workshop was, I've learned a lot!”
- Patient advocate
Key insights from across the three workshops:
- Lay language – there is a need to simplify communications with patients to ensure understanding.
- Local language - there is a lack of local language resources and tools that take into account cultural/ethnic nuances.
- Digital health literacy - there is a lack of understanding around data ethics, digital policies and digital terminology.
- Information - there is a need for multi-channel disease awareness campaigns to ensure populations are receiving credible information.
- Access to internet – the lack of connectivity/ internet access is an issue for most in rural or remote areas.
Top tips for starting your journey to activating change!
- Develop your own action plan for activating change
- Recruit volunteers/staff to support your mission
- Look out for funding opportunities to help your iniative go further
- Partner with Governments, health providers, industry and others to help your patient community create lasting change
- Partner with other patient organisations in other disease areas to maximise your efforts
- Get inspired and watch videos from IEEPO changemakers who initiated change from the ground up
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